Did you know that a large percent of the medical community has never even heard of mosaic Down syndrome?  Sadly, a much larger percent of parents and educators have no knowledge of mDs. 

As a parent of a child with mDs, many are confused and do not know what this diagnosis means for their child. With your donation, we will be able to provide information to people around the world about mDs! These funds will also be used to enable us to provide an educational conference for all those interested in mDs. In addition to educating the public about mDs, we also provide support to families of children with mosaic Down syndrome. With this support system, parents are able to interact with other parents having the same concerns and often find solutions to their problems when raising their child with mDs. You will find more than support with our organization; you will find a whole new family when you join IMDSA!

NIH Funding for Down Syndrome Research doubled in 2019

In 2019, the National Institutes of Health awarded approximately $35 million in new grants in fiscal year (FY) 2019 to advance research on Down syndrome through the Investigation of Co-occurring Conditions Across the Lifespan to Understand Down Syndrome (INCLUDE) project. Total funding for Down syndrome research in FY 2019 was an estimated $77 million. While this number essentially doubled the amount for Down Syndrome research, the 2019 NIH budget was 39 billion dollars. The funding for Down Syndrome research was less than .0019. Funding for specific mDs research is even more limited in scope. Which explains why IMDSA's primary focus is raising money for mDs specific research that can help our families and individuals born with the condition manage their health care and educate the medical community that we rely on for their care.

mDs Research Projects

IMDSA works with various researchers to discover more about mosaic Down syndrome. Learn about the research programs we are involved with.

Consider a extra gift to IMDSA for mDs research and plan on participating in our Research & Retreat next July 2023.