Cryptic Mosaicism Study – Enrollment Temporarily Paused

New enrollment in the Cryptic Mosaicism Study is temporarily paused and is expected to reopen in late spring 2027.

The study remains active, and IMDSA continues to support this important research aimed at expanding our understanding of mosaic Down syndrome and cryptic mosaicism.

We are incredibly grateful for the interest, participation, and continued support of individuals and families in our community. During this temporary pause, we will not be accepting new participants into the study.

Please check back in late spring 2027 for updated enrollment information and next steps.

Thank you for your patience and for helping us continue to advance research and awareness within the mosaic Down syndrome community.

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IMDSA JR SALT (Ages 15-19) Registration

Start
15 Feb 2026
End
11 Mar 2028
Location
Anywhere via Zoom

Registration

Register to join SALT
Register to join the virtual zoom calls and connect with other self-advocates living with mosaic Down syndrome. Once we receive your request to join the team, someone from IMDSA will contact you.

Registration is now closed. All spots filled!

The first session starts on April 12th at 4:00 pm EST.

Parent Consent for Participation – JR S.A.L.T Group
(Ages 15–19)

By registering, you are providing consent for your child (Ages 15–19) to participate in IMDSA’s JR S.A.L.T. social-emotional group, facilitated by licensed school psychologists.

This group supports growth in:

Emotional regulation
Communication skills
Self-awareness
Interpersonal relationships

Participation is voluntary. Your child may withdraw at any time. Sessions are conducted in a safe, supportive environment where individuals are encouraged to share only what feels comfortable.

Confidentiality

Confidentiality is an important part of the group process. However, facilitators are mandated reporters and must act if information suggests risk of harm to a participant or others. In such cases, appropriate professionals may be contacted to ensure safety.

Please note:
This group is not individual therapy or counseling. Facilitators may contact parents if concerns arise or additional support is recommended.

Facilitators:
Sonya Cabral, Ed.S., NCSP
Angelica Torres, Ed.S., NCSP

International Mosaic Down Syndrome Association

PO Box 321, Grand Haven, MI, 49417

Email - Executive Director, Brandy Hellard