Cryptic Mosaicism Study – Enrollment Temporarily Paused

New enrollment in the Cryptic Mosaicism Study is temporarily paused and is expected to reopen in late spring 2027.

The study remains active, and IMDSA continues to support this important research aimed at expanding our understanding of mosaic Down syndrome and cryptic mosaicism.

We are incredibly grateful for the interest, participation, and continued support of individuals and families in our community. During this temporary pause, we will not be accepting new participants into the study.

Please check back in late spring 2027 for updated enrollment information and next steps.

Thank you for your patience and for helping us continue to advance research and awareness within the mosaic Down syndrome community.

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2026 IMDSA Research and Retreat Conference Registration

Start
11 Mar 2026
End
09 Jun 2026
11:55 PM
Location
Denver, CO

Registration

Board Member or Sponsor Registration
Family Registration – $300.00
Registration is for up to two adults and their children.
Individual registration – $125.00
1 adult registration
Scholarship Registration

Join us for the world's largest mosaic Down syndrome meet up!

Mosaic Down Syndrome Research & Retreat

Conference Registration

Denver, CO

June 19th - 21st, 2026

Deadline to register is June 5th!

Cost:

Individual Registration: $125
Family Registration: $300

Family registration is intended for one household, typically including up to two parents or guardians and their dependent children living in the same home.

Extended family members such as grandparents, aunts, uncles, or additional adult relatives are welcome to attend and should register separately so we can plan appropriately for space, materials, and programming.

Your Registration Includes:

Entry into all IMDSA conference workshops, research presentations, and roundtable discussions held Friday evening, Saturday, and Sunday
Access to the Science & Society sessions on Saturday with the international T21RS Collaborative conference. Lunch and childcare provided at no additional cost.

(located a short 3-minute walk from the host hotel and included at no additional cost)
Opportunities to participate in mosaic Down syndrome research studies throughout the weekend
Community networking opportunities with families, researchers, exhibitors, and partners

By completing this registration form, registrants acknowledge and agree to not hold IMDSA, its volunteers, and/or board members responsible and/or liable for any harm, illness, injury or accident.

Furthermore, by submitting this registration form, registrants acknowledge and agree to not hold IMDSA, its volunteers, and/or board members responsible for any unforeseen cancellations of any scheduled workshops and/or events throughout the conference weekend.

Registrants acknowledge and agree to the following cancellation policy if said registrant deems it necessary to cancel their registration.

International Mosaic Down Syndrome Association

PO Box 321, Grand Haven, MI, 49417

Email - Executive Director, Brandy Hellard