Cryptic Mosaicism Study – Enrollment Temporarily Paused

New enrollment in the Cryptic Mosaicism Study is temporarily paused and is expected to reopen in late spring 2027.

The study remains active, and IMDSA continues to support this important research aimed at expanding our understanding of mosaic Down syndrome and cryptic mosaicism.

We are incredibly grateful for the interest, participation, and continued support of individuals and families in our community. During this temporary pause, we will not be accepting new participants into the study.

Please check back in late spring 2027 for updated enrollment information and next steps.

Thank you for your patience and for helping us continue to advance research and awareness within the mosaic Down syndrome community.

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2026 S.A.L.T. Connections Program Registration

Start
11 Mar 2026
6:00 AM
End
10 Jun 2026
11:55 PM
Location
Denver, CO

Registration

Self-Advocate Leadership ages 15 and up – $20.00
This fee helps provide bowling, lunch, workshop materials, and coordinated group activities led by our S.A.L.T. facilitators. It also helps support program planning and staffing so participants can enjoy a fun, supportive, and engaging experience.

Registration is closed

S.A.L.T. Connections Program

S.A.L.T. Off-Site Activity Acknowledgement

Participants registered for the S.A.L.T. Workshops understand that the program includes a supervised group outing involving walking on public sidewalks to Lucky Strike Bowling Alley, located approximately one block from the host hotel.

By registering, you acknowledge that participation in off-site activities involves normal everyday risks. You confirm that the participant is able to safely walk this short distance and participate in bowling activities.

Please notify IMDSA in advance of any mobility needs, medical considerations, or support requirements so appropriate planning can be considered.

Participation in the S.A.L.T. Workshops indicates understanding and acceptance of this acknowledgement.

International Mosaic Down Syndrome Association

PO Box 321, Grand Haven, MI, 49417

Email - Executive Director, Brandy Hellard